Sunday, August 14, 2011

Back to the Hospital...and Then Home Again - 162 Days Old

We've had a concerning week with Aiden this week. During the nights while he was sleeping, his heart rate would drop down so low that it would make his monitor alarms go off. This started happening a few times a night and then got progressively worse. Usually, the rate would only stay low for a few minutes, and then pop back up to where it should be. As the week went on, this started happening more and more often. One time, the rate stayed low for about thirty minutes. I was out of town and it scared Amaraa. She called the NICU and asked them what she should do. They suggested she turn up the oxygen flow rate a little bit and that would cause the heart rate to stay up. She tried that and the problem seemed to get a little better. They told her that she should take Aiden to the Emergency Room if this continued to happen. He seemed more fussy than usual, wasn't eating very well, and seemed uncomfortable. I thought the heart rate issue could be a problem with the monitor, but we weren't sure. We felt like we needed to have him checked out. When I came home from Price on Saturday, we hopped in the car and took him up to the ER at Primary Children's. We arrived at the hospital at around 4:00 PM. They checked him over and ran some tests. They gave him an Albuterol breathing treatment and he calmed down. They monitored him for a while and told us they would like to admit him and watch him overnight. There wasn't a bed available, so we ended up sitting in the ER until about 9:45 PM. On the hospital monitors, his heart rate and oxygen saturation levels looked great. When they found a room for us, we hooked him back up to our monitor for the trip upstairs. About a minute after I hooked him up, the heart rate dropped down low and the alarm started sounding. We hadn't moved him yet. He was calm. He didn't seem to be distressed. His oxygen saturation levels were still fine. I couldn't believe that it could be an accurate reading when he had been holding steady on the hospital monitors for the last five hours. We went upstairs the the Children's Surgical Unit and were admitted into a room.

The room had a crib, a chair that folded out into a short bed, and a rocking chair. Amaraa and I both decided to stay with Aiden overnight. Unfortunately, the fold-out chair would only accommodate one person. I tried my best to find a comfortable position on the rocking chair, but finally gave up. I spread out a blanket on the floor and slept there. What a miserable night! I only slept about three hours and woke up with a migraine. When the morning finally rolled around, the nurses and doctors came in to do their rounds. They had monitored Aiden all night and said he didn't have any episodes of bradychardia (the heart rate drops). They said he looked really good on the monitors all night. One of the nurses said they were going to move us to a different room sometime today. They kept talking like we were going to be staying another night. Amaraa and I decided to run home to Lehi to grab some necessities in preparation for another night. When we got home, I took a quick shower, we grabbed what we needed, and headed back toward the hospital. When we got back, we saw the nurse still holding Aiden in his room. She said he wouldn't let her put him down except for about fifteen minutes when he fell asleep. She also said that the doctors had decided they were going to discharge Aiden. We were really happy.

Ready to get out of the hospital...again.
The doctor came in about a half hour later and told us that Aiden looked great. She said he had been solid as a rock overnight and hadn't shown any signs of bradychardia. They had run virus panels and other tests that all came back negative. They had done a blood gas test and a chest x-ray, and both of those came back right in line with the ones that had been done before he was discharged from the NICU. He had two echo cardiograms while he was in the NICU and those both showed that there were no structural problems with his heart. The doctor was positive that the problem was the monitor and not a problem with Aiden. She recommended that we discontinue use of the monitor entirely. I told her I wasn't comfortable doing that yet, but that we would disregard the heart rate monitor part of it. I want to continue monitoring his oxygen saturation levels because the monitor will alert us if the cannula comes out of his nose, if an oxygen tank runs out of oxygen, etc. She said it is possible to set the monitor to only alarm on the oxygen saturation side, and not on the heart rate side.

As soon as we finished talking to the doctor, we received Aiden's discharge papers and we went downstairs to the car. We were really happy that we didn't have to stay any longer. I wasn't looking forward to another night on that hard floor. Of course, we were mostly excited to find out that there was nothing wrong with our little guy. It was reassuring to find out that he was doing well after being home for a couple of weeks.

In my last post, I mentioned the Torgerson family reunion that we had last weekend. While I was there, I found out that my cousin, Alynn, is somewhat of a celebrity. She is a food blogger and has been on Studio 5 on KSL. I checked out her blog and everything on it looks really yummy. Her blog is called "Meals 4 Moms" and you can find it by clicking here. The whole idea of the blog is to "help moms spend less time in the kitchen and more time with the ones they love." Check it out. Bookmark it. Visit it often. It's definitely worth your while.

Wednesday, August 10, 2011

August 9, 2011 - 157 Days Old

It's nice to have "En-ay" home
Well, Aiden has been home for a week now. It has been a week of adjusting. Aiden is adjusting to his new surroundings, a new bed, new toys, etc. We are adjusting to his 24-hour care, giving his medications and treatments, having his monitor alarms go off every two seconds, not getting much sleep, etc. We are thrilled to finally have him home, though. It's so nice not to have to drive for an hour to see him. For the most part, he has done really well at home. He still requires a lot of care, but hopefully as he grows older, he will get easier and easier to care for. We are still trying to get used to all of the new noises. Aiden's oxygen concentrator (the piece of equipment that makes oxygen for him from room air) is quite loud. It also creates a lot of heat, so I had to install a ceiling fan to keep from having to freeze out the rest of the house just to keep our room at a reasonable temperature.

I've been applying and interviewing for jobs for the last couple of weeks. I've had two interviews so far. I feel like they have gone well. I hope to find something before school starts.

We had a family reunion for my Torgerson side on Saturday. I went and took Skylar and Jasmine with me. It was a really great time. We haven't had a family reunion on that side of the family since the mid-90's. I haven't seen a lot of my cousins for a really long time. One of them I hadn't seen since I was just a little kid. It was neat to be able to get reacquainted with them and meet their families. Since we can't take Aiden around crowds or kids, Amaraa stayed home with him. Everyone asked about them and wondered how they were both doing. I really missed having them there, but we planned another reunion for next year, so hopefully by then our family will all be well enough to attend.

I took Skylar and Jasmine swimming last night for FHE. We had a really fun time. It has been way too long since we went swimming last. They both said they want to go again soon. The summer seems to be ticking by way too fast. Before long, Skylar and I will be in school and there won't be as much time to do things, so we're trying to pack it all in before school starts. Speaking of school, I registered Skylar for school today. We're going to send him to a different school this year. We liked his charter school, but we didn't feel like we would be able to meet the parental volunteer requirements this year with Aiden at home. We decided to send Skylar to an elementary school about two blocks away from our house. We have heard good things about the school from our neighbors, so I think it will work out better for us this year.